Media Posts
OUR PROGRESS IN SEPTEMBER 2025
November 28, 2025
WP8 Development of Network Activities
Strengthening Our Voice, Growing Our Network
September marks a season of renewed activity across the Networking Activities within EUnetCCC as our tasks and teams pick up pace after the summer. From guidelines and prevention hubs to research and data initiatives, each subtask is moving forward with concrete outputs and upcoming events. Together, these efforts are laying the groundwork for a stronger, more connected network that will take centre stage in Paris this November.
Stay tuned for highlights from across WP8 — and thank you for the energy and collaboration you bring to our shared mission.
Task 8.1 WP8 Infrastructure
Tool kit folder is now available on SharePoint!
Exciting news from 8.1 – we’ve launched a new folder in SharePoint called Tool Kit!Inside, you’ll find a growing collection of helpful resources, including sample surveys, invitation letters, step-by-step guidelines for the survey process, checklists for planning workshops, and much more.
This is just the beginning — our aim is to continuously expand the folder with even more useful guidelines and policies to support your work. Stay tuned and feel free to contribute!
Task 8.2.1 Guidelines for CCCs
Team Guidelines second core group meeting on site
The Core Group Meeting Guidelines event in Barcelona, hosted by the Vall d’Hebron Institute of Oncology (VHIO), brings together core members for intensive workshops and strategic discussions, focusing on collaborative planning and alignment around our future work.
Following the summer break, our core group has undergone a reorganisation, and the upcoming work will be carried out within four dedicated subgroups, each focusing on a specific area:
Elaborate on Guidelines Indicators to ensure standardization, consistency and effectiveness and to help measure how well the guidelines are adopted and their impact on healthcare outcomes.
Establishing contacts with medical societies.
Establishing contacts with patients’ organizations and advocate groups.
Establishing contact with 4-6 CCC´s within the network to analyze their guidelines strategies and requirements for the efficiency of guidelines implementation.
Task 8.2.2 Personalized Cancer Prevention
Teaming heads to Iceland (5–6 March 2026)
We’re excited to announce our next teaming activity will take place at Landspítali, Reykjavík, on 5–6 March 2026. The visit will focus on operationalizing Cancer Prevention Hubs, with hands-on sessions, pathways walk-throughs and peer exchange. Registration will open shortly—watch your inbox for the online form.
Meanwhile, we’re finalizing the Transferability Protocol (PIET) to help centers adapt the hub model locally; We and our core members will meet in person in Paris on 5 November (14:00–16:00 CET) ahead of the Annual Meeting (6–7 Nov).
Task 8.2.3 Cancer Research
Symposium “Innovating Cancer Care Through De-escalation Studies”. Save the date!
De-escalation trials are important because they aim to reduce the intensity of medical treatments, improving patients’ quality of life and well-being by minimising toxicity and side effects—without compromising the effectiveness of cancer treatment. With this symposium, we aim to identify and address the challenges and requirements necessary for the successful initiation of de-escalation trials. Our long-term goal is to improve their quality and increase the number of such trials. The symposium is organized in collaboration with the European Academy of Cancer Sciences.
Key details:
Date: 05-06 March 2026
Location: Netherlands Cancer Institute, Amsterdam
Format: Physical
Reach: Open for everyone, up to 300 participants
Target audience: Researchers, clinicians, statisticians, European Medicine Agency, patient representatives, pharmaceutical industry, health insurance companies, leadership of EUnetCCC institutions
Registration link/details: Registration link will come soon
Agenda highlights:
Session 1: Why de-escalation now?
Session 2: Modality-focused innovations (radiotherapy, immunotherapy, surgery).
Session 3: Panel discussion-1 “How to identify who would gain from de-escalation?”Session 4: Case studies in de-escalation.
Session 5: Regulations, resources and return on investment in De-escalation trials.
Session 6: Panel discussion-2 How to realize de-escalation trials?
Contact details:
For any inquiries, please reach out to: Professor Peeter Karihtala, chair of the organizing committee (peeter.karihtala@hus.fi) or project coordinator Ieva Ailte ( ievail@ous-hf.no)
News link for the event: https://eunetccc.eu/news
Task 8.2.4 Precision Cancer Diagnostics
A busy autumn for Precision Diagnostics
2nd webinar in our series, 'Advancing Data Collection in Molecular Tumour Boards' held on the 19th of September, building momentum after our first webinar in June 11 'Exploring Molecular Tumour Board Operations and recent guidelines'. In addition, we are preparing for site visits to Gustave Roussy, to OUS and to Hartwig in October and November, building on the successful visit to Vall d'Hebron in June. We will present an abstract to ESMO's annual conference in October, and hold our second face-to-face core group meeting. We have recruited two patient representatives to our subtask, developed a patient involvement and a communications strategy.
Task 8.2.5 Secondary Use of Clinical Data
Calling stakeholders to join Task 8.2.5 activities
This month, Task 8.2.5 is carrying out an extensive mapping exercise to identify stakeholders across the EUnetCCC core group and participating institutions. We are seeking data management professionals to contribute to the data maturity assessments starting in October. In addition, Task 8.2.5 is recruiting patient representatives to join its Patient Advisory Board. For further information, please contact the task leads.
Task 8.2.6 Clinical Trials
Clinical Trials Exchange Programs & Expert Online Thematic Meetings Launching This Autumn
We are excited to share two initiatives coming up this autumn that are designed to strengthen collaboration and exchange across Europe’s clinical trials community.
Clinical Trials Exchange Program
The Clinical Trials Exchange Program is a cross-border initiative that will run between October 2025 and January 2026. Five host institutions will open their doors to two or three visiting institutions for a series of dynamic 1.5-day site visits. Each visit will combine presentations from the host institution with introductions and spotlights from the visiting units, followed by expert discussions.
The program is tailored to different professional roles: clinicians and principal investigators will explore patient-centered topics such as recruitment strategies and long-term retention, while clinical trial managers and study coordinators will focus on organizational tools and practical approaches to daily management. Integrated site visits will give participants direct exposure to each host’s operational setup, creating an invaluable opportunity for hands-on learning and peer-to-peer exchange.
Online Thematic Expert Meetings: Academic CROs
In parallel, we are also designing a series of online webinars shaped by topics identified as important by the community. The first series will focus on academic CROs and will take place in two parts: the first session, at the end of October, will address how to set up an academic CRO, while the second, at the end of November, will look at day-to-day activities and challenges.
Each two-hour session will feature two expert speakers giving short presentations, followed by interactive discussion. Participants will be encouraged to submit their questions in advance so that real case studies can be discussed live. The webinars are aimed at a broad audience, with particular relevance for the hospital-based clinical trial workforce. Details about the experts and registration will be announced very soon.
Task 8.2.7 Cancer Survivorship
Strengthening Survivorship Care: Call for Experts + Malta Q1 2026 Visit
WP8.2.7 is moving from mapping to action. We’re consolidating survey insights to draft minimal survivorship standards aligned with the CRANE framework. We’re also seeking psycho-oncology experts—if your hospital has a dedicated onco-psychology service, please contact the WP8.2.7 team to join our thematic groups. Looking ahead, we’re planning a site visit in Malta (Q1 2026) to learn from local survivorship practices; dates and details will follow. We’ll also hold a face-to-face core group meeting in Paris on 5 November (16:00–18:00 CET), ahead of the Annual Meeting.
Task 8.3 Dissemination & Evaluation
Boosting Communication Ahead of Paris
Task 8.3 has been working intensively on strengthening our communication channels as we approach the Annual Meeting in Paris. The EUnetCCC website is now live, serving as the central hub for news, resources and events. Together with the monthly newsletters, it provides partners and stakeholders with a clear view of WP8 activities and achievements.
Our aim is to ensure a unified message and a strong, coordinated team effort together with WP2. Our shared Communication & Dissemination Strategy focuses on three priorities:
Increasing the visibility of network activities through regular updates and storytelling.
Supporting cross-task collaboration by highlighting synergies and shared outcomes.
Preparing tailored dissemination materials to showcase EUnetCCC’s impact during the Annual Meeting.
Looking ahead, Task 8.3 will continue to collect updates from each subtask and package them into engaging outputs — from articles and social media posts to webinars and partner spotlights. Stay tuned for new formats rolling out this autumn!
PROJECT-WIDE NEWS & ANNOUNCEMENTS
Success Story
EUnetCCC | WP8 Collegial Interviews
Complejo Asistencial Universitario de Salamanca (CAUSA)🇪🇸
The Governance, Organization and Leadership Task conducted the first collegial interviews - two days of hospital walk-throughs featured open, collegial conversations across services and research. Seeing care spaces and meeting teams brought WP8’s aims to life: connecting people, processes, and data so every patient experiences one coherent pathway from diagnosis to survivorship.
Themes from the event
Patients as partners: meaningful feedback and co-design, with practical changes guided by what matters most to patients and caregivers.
Research that reaches the bedside: clinic–academic teamwork that shortens the distance from idea to care and expands access to innovation.
Nurses at the core: leadership, training and locally authored protocols that make day-to-day care reliable and safe.
System learning: coordinated guidelines, digital tools and regional links that help services work as one pathway across the network.
Quote of the event
Patients are part of the team.
Success Story
Cancer Research: Participation in the Nordic Precision Cancer Medicine Meeting – Oslo, September 15–17
WP8.2.3 attended the Nordic Precision Cancer Medicine meeting held in Oslo from September 15–17, which focused on bridging clinical research with standard healthcare across the Nordic region. The event brought together a diverse community of researchers, clinicians, health economists, and patient representatives, providing a valuable opportunity to strengthen interdisciplinary collaboration.
During the meeting, we gained insights into the latest developments in personalized medicine and national cancer strategies within Nordic countries. The meeting also confirmed the need for more knowledge and support for de-escalation studies— challenging yet essential components in advancing precision cancer medicine. These studies aim to tailor treatments more effectively while minimizing unnecessary interventions.
WP8.2.3 declares an urgent need for a dedicated symposium and network on De-escalation studies in cancer. Such a symposium and platform will be instrumental in promoting and accelerating these efforts across Europe.
Success Story
Precision Cancer Diagnostics and Secondary Use of Clinical Data - Jointly hosted a webinar titled "Advancing Data Collection from Molecular Tumour Board Operations"
Precision Cancer Diagnostics and Secondary Use of Clinical Data jointly hosted a webinar titled "Advancing Data Collection from Molecular Tumour Board Operations" on 19 September 2025, which brought together 92 participants from across Europe. Task leads Live Fagereng and Elin Naderi presented the EUnetCCC strategy to promote harmonised data collection from MTBs within the European network of CCCs. Representatives of the 1+MG initiative, the AcSe Program, PRIME-ROSE, and JA-PCM presented their activities, complemented by perspectives from the pharmaceutical industry. The session concluded with a discussion on how EUnetCCC can support the definition of a minimum variable dataset that meets the needs of a wide range of stakeholders.
Success Story
Clinical Trial team meets in Barcelona
The Clinical Trial Lead Team Meeting, co-led by ULS Santa Maria Maria, Karolinska Institutet and Karolinska University Hospital and Vall d'Hebron Institute of Oncology (VHIO).
We aligned on our 3-year strategy to shape Clinical Trial ecosystems in Europe, and planned core networking activities for 2026 and beyond: a Resource Center, exchange programs, online expert sessions, and initiatives to empower patients and engage industry.
Upcoming Events
Task 8.2.3: WP8.2.3 online meeting for Core group members and participants
October 3, 2025 - Online
On this meeting, Task Cancer Research (WP8.2.3) will discuss the plans and roadmap for 2025-2026, based on the results from the recently published Cancer Research Ecosystem Survey Report 2025.
Task 8.2.3: WP8.2.3 online meeting for Core group members and participants
October 7, 2025 - Online
On this meeting, Task Cancer Research (WP8.2.3) will discuss the plans and roadmap for 2025-2026, based on the results from the recently published Cancer Research Ecosystem Survey Report 2025.
Task 8.2.5
October 22, 2025 - Riga, Latvia
Several members of the core group will attend the second WP9 meeting in Warsaw to plan and strengthen the collaboration between WP 8.2.1 and WP9.
Task 8.2.1
October 23-24, 2025 - Warsaw, Poland
Several members of the core group will attend the second WP9 meeting in Warsaw to plan and strengthen the collaboration between WP 8.2.1 and WP9.
Task 8.2.1
November 5, 2025 - Online
Workshop on implementation of decided strategy (On site (pre) meeting in Paris).
F2F Core meeting in Paris
November 5, 2025 - Unicancer Paris, France
8.2.4 Educational Seminar Precision Diagnostics
December 1-2, 2025 - Barcelona, Spain
Task 8.2.1
December, 2025 - Online
Inspiration lectures on effective guideline implementation (Online. With Participants and Core Team Members. Date to be decided).
Task 8.2.1
End of 2025 or beginning of 2026 - Online
Workshop with patient organisations. (Date to be decided).
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