OUR PROGRESS IN MAY 2025

WP8 Development of Network Activities WP8 Infrastructure

Welcome to the May 2025 edition of the EUnetCCC WP8 Newsletter!

This monthly update brings you the latest developments from each WP8 task, showcasing the incredible momentum across our collaborative network. From surveys and strategic workshops to new educational initiatives and dissemination tools, every subtask is actively contributing to building a stronger, more integrated European network for comprehensive cancer care.

Whether you're deeply involved in a specific task or just curious about the broader picture, this newsletter is your go-to source for staying informed, inspired, and engaged.

Task 8.1 WP8 Infrastructure

First face-to-face meeting in the 8.1 and 8.3 core group

We are having our first face-to-face-meeting in our core groups in Maribor 27-28 of May. The plan is to continue the work with supporting the 8.2 sub-task. We will evalutate the work that has been done and plan future activities.

Task 8.2.2 Personalized Cancer Prevention

Advancing the Cancer Prevention Hub Framework

A revised draft of the Cancer Prevention Hub framework has been shared, integrating feedback from core members. The concept outlines a hospital-based model for personalized prevention, interdisciplinary collaboration and spreading awareness. Planning for the next in-person meetings is currently underway — stay tuned. Task 8.2.2
continues to advance toward defining practical, scalable models for cancer prevention
across EUCCCs.

Task 8.2.3 Cancer Research

Final results of EUnetCCC Research Ecosystem survey discussed at the Face-to-Face Core group
meeting in Oslo

Engaged members and participants from more than 30 cancer research-performing institutions in 20 European countries submitted their data to EUnetCCC Cancer Research Ecosystem Survey during the spring 2025.
The goal of the survey was to identify and map strengths and resources as well as obstacles and bottlenecks in cancer research.

The survey results were compiled by Task Lead of WP8.2.3 and discussed by WP8.2.3 Core group in a Face-to-Face meeting in Oslo on May 5-6th. The data from the survey were fundamental for selecting the most important and relevant topics for networking activities such as symposiums, workshops and twinnings for 2025-2028.

The following topics have been identified and selected so far:
1) De-escalation studies,
2) Cancer treatment resistance,
3) Functional precision medicine - ex vivo functional assays,
4) Biobanking and data sharing, and last, but not least
5) patient involvement in cancer research.

Task 8.2.4 Precision Cancer Diagnostics

Progress on capacity building, knowledge sharing, and dialogue

This has been a busy month. The educational seminar 1-2 December at Vall d'Hebron has confirmed
speakers, date, learning objectives. We clarified questions around corporate sponsors, budget, communications, and are actively working on opening registration. 

The lead team pivoted from proposing harmonised guidelines for Molecular Tumour Board workflow, to instead host an active dialogue to discuss MTB guidelines from both ESMO and CanHeal. This dialogue with key representatives from each group provides a unique opportunity to address the discrepancies between the two sets of guidelines, and how to move forward with their implementation across the members. 

Four site visits have been planned - Hamburg University Hospital will visit IPO Porto 6-7 July, Vall d'Hebron will visit Harvtig Foundation and NKI after the summer, Karolinska will visit Vall d'Hebron in 16-17 June, and Skåne CCC will visit
Gustave Roussy 5 november. Of these, three sending organisations have had dialogue with their hosts to define expectations, identify participants and to refine the agenda. These steps are crucial to ensure the usefulness of the visit itself. An evaluation survey and communication plan are under discussion to capture results and document these peer learning activities.

The lead team is busy working on the design and content for the knowledge sharing portal related to precision diagnostics: incorporating learning modules, best practices and reddit-like forum for exchange.

Task 8.2.5 Secondary Use of Clinical Data

Focus on governance and planning

At the end of April, we held our conference in Berlin. It was an important step in establishing our task. During the conference, we agreed that the work within Secondary Use of Clinical Data will be carried out in three focus areas:
1. Health data management and exchange
2. Childhood cancer equity
3. Knowledge center

We are now processing the material from the conference and working on governance so that we can begin concrete activities within our focus areas as soon as possible.

Task 8.2.6 Clinical Trials

Strategic In-Person Meeting in Lisbon to Advance the European Clinical Trials Engine

On May 15–16, WP8 held a vibrant in-person meeting in Lisbon , hosted by Unidade Local de Saúde Santa Maria. This gathering brought together core group members to take a major step forward in building the European Clinical Trials Engine. 

Participants shared the first results of a Europe-wide survey on clinical trials — with over 100 responses from across the continent — offering valuable insights into current practices and challenges. The meeting also featured hands-on workshops focused on key topics such as exchange programs, educational materials for patients, public private partnerships, and expert groups .

Thanks to the collective input, we’ve started shaping the main pillars of our strategic roadmap for the coming years. Exciting progress — and more to come! 

Task 8.2.8 Governance, Organization and Leadership

Inaugural Scientific Advisory Group meeting, and a Call for Interview support 

On 9th May 2025 the Governance, Organisation and Leadership subtask welcomed distinguished academics in organisational science from across Europe to Oslo University Hospital for the inaugural meeting of the subtask’s Scientific Advisory Group. In an enjoyable and stimulating day, the group gave us much to think about regarding the
ongoing development of our Collegial Interview Process. 

We are also using this month’s Newsletter to reach out to the other WP8 subtasks for support for these Collegial Interviews. Interviews will be Chaired by members of our Lead and Core teams, but we need resource to support Interview Chairs, to help them manage and prepare for Interview Events.

Interview Project Managers will also attend Interviews – so this is a great opportunity for someone who would like to be present at these in-depth discussions between leadership teams of CCCs and candidate CCCs. Please get in touch if you are, or if you know, someone who would relish such a role.

Task 8.3 Dissemination & Evaluation

Building WP8’s Visibility and Impact

As the communication lead for WP8 – Development and Implementation of Network Activities – I am excited to share our progress in building a unified, strategic voice for EUnetCCC Network. Our role in Task 8.3 is not just about sharing information. It’s about creating impact through visibility, alignment, and meaningful engagement. This month, we have worked closely with all Task Leads to streamline our dissemination processes—making sure every milestone, every story, and every innovation from WP8 is seen and heard across the network and beyond.

Whether it’s supporting educational seminars, collegial interviews, knowledge reports, site visits, or twinning activities, the communication team is here to
help disseminate your outcomes, amplify your success stories, and promote the shared achievements of our activities.

We are finalizing the structure for the upcoming EUnetCCC WP8 website, which will serve as a central hub to showcase our progress and engage external audiences, providing visibility and access to the full breadth of our network collaborative efforts.

By anchoring our strategy in shared templates, clear messaging, and active coordination with WP2 (Communication) and WP3 (Evaluation), we’re building strong foundations for long-term visibility and engagement.

Sneak peak into the Evaluation section of Task 8.3 - a draft plan has now been prepared outlining relevant time points for data collection. The plan is based on the timing of milestones, deliverables, KPIs and annual reports in WP8. The draft is to be discussed with the WP8 leadership team. More to come after the EUnetCCC WP3 Annual meeting.
Let’s keep amplifying our impact—together.

Stay connected:

Follow our updates here: EUnetCCC LinkedIn

Contact: Nina Nicoara nina.nicoara@outlook.co

Project wide news & announcements

 Success Story

EUnetCCC advances personalised-prevention agenda at JANE-2 WP 8 meeting in Rome

On 25 March, EUnetCCC partners joined the in-person WP 8 gathering of the JANE-2 Joint Action—hosted by Università Cattolica del Sacro Cuore—to strengthen a panEuropean network of expertise in personalised cancer prevention. Task leads spanning health literacy, lifestyle, genomics, sustainability, governance and dissemination outlined joint priorities for evidence-based, inclusive and actionable prevention strategies.

Special thanks to Dr Delia Nicoară and Prof Stefania Boccia for steering the discussions that bridge research and implementation across national and EU levels.

Success Story

8.1 and 8.3 Workshop – Strengthening WP8 Collaboration in Maribor

Just wrapped up an inspiring and highly successful workshop in Maribor, Slovenia, focused on strengthening the collaborative tools and communication strategies for Work Package 8 (WP8) of the EUnetCCC project!

Through open dialogue, hands-on exercises, and strategic planning, we made meaningful progress in aligning our approaches, sharing best practices, and enhancing the digital tools that empower this vibrant European network.

Success Story

Guidelines Core Group gathering at Sahlgrenska CCC

The Core Group for Task 8.2.1 – Guidelines is gathering at Sahlgrenska Comprehensive Cancer Centre, hosted by Sahlgrenska University Hospital, to shape the strategic future of cancer care guidelines across Europe.
This two-day workshop will include a collaborative deep dive into how we work with guidelines today—and how we should evolve. Let’s align our efforts to build stronger, evidence-based pathways for comprehensive
cancer care.

Success Story

Strengthening Cancer Prevention Across Europe: First EUnetCCC WP8 Teaming Workshop – Lyon, April 2025

In April 2025, the first EUnetCCC WP8 Teaming Workshop was held at CLB Lyon, uniting experts from France, Romania, Latvia, and Iceland to advance personalised cancer prevention. The event marked the launch of the Cancer Prevention Hub model — a hospital-based service focused on primary and secondary prevention, with future integration of survivorship care. 

Key contributions came from Dr. Delia Nicoară (IOCN) and Pr Béatrice Fervers (CLB), highlighting collaborative strategies and national frameworks. A follow-up interview will share more insights from the workshop.

 Success Story

Kicking off the next phase of EUnetCCC Task 8.2.5

On April 24th, the core group of Sub-task 8.2.5 (Secondary Use of Data) came together for our first in-person meeting in Berlin — a significant step forward in our shared mission.

The sessions were introduced by the lead team Mikael Dominguez Petrén, Elin Hallan Naderi, and Maria Ekendahl with emphasis on three focus areas:
Health data management and exchange
Childhood cancer equity
Knowledge centre

The meeting was dynamic and highly participatory — a clear shift from planning to concrete action. We're leaving Berlin energized, united, and mindful of the ambitious work ahead.

A heartfelt thank you to our generous hosts at Deutsche Krebsgesellschaft, especially Christoph Kowalsky and Sophie Schellack, for the warm welcome and seamless organization.

Success Story

Clinical-trials roadmap set at Task 8.2.6 meeting in Lisbon

On 15–16 May 2025 the Task 8.2.6 Core Group gathered in person at ULS Santa Maria, Lisbon, for a 1½-day workshop that mapped strategic goals for EUnetCCC’s clinical-trials programme. Working groups advanced five priority areas—survey analysis, educational resources, exchange schemes, public-private partnerships and expert round-tables—while
a site visit showcased the hospital’s trial infrastructure. The outcomes provide a clear action plan for 2025 and lay the groundwork for stronger, collaborative trial activity across the network.

Success Story

EUnetCCC showcases vision at Europe Biobank Week 2025

Dr. Delia Nicoară, Ieva Ailte and Kristin Austin represented the network at Europe Biobank Week 2025, advancing WP 8’s goal of data-driven collaboration among Europe’s Comprehensive Cancer Centres. The conference spotlighted solutions for better data integration and patient engagement—insights that will feed into a stronger, more connected cancer-research ecosystem across the EU.

Success Story

EUnetCCC contributes to EUCanScreen summit in Turin

Dr. Delia Nicoară, Dr. Beatrice Fervers, Margaux Legall and Solène Trevidic joined European experts at the three-day EUCanScreen meeting—co-ordinated by Latvia—to align national cancer-screening programmes with the EU Cancer Plan. The discussions centred on improving quality, accessibility and equity while forging stronger links between population screening and personalised prevention. Outcomes will help Comprehensive Cancer Centres deliver evidence-based, equitable screening across all Member States.

Learn more about the EUCanScreen mission
EucanScreen LinkedIn

Upcoming events

May 30, 2025 - Core group meeting for Task Cancer Research (WP8.2.3)

Online

At the next Core group meeting, we will select working groups that will be responsible for developing and organizing activities on topics identified by EUnetCCC Research Ecosystem Survey. The core group online meetings occur
every second Friday at 11-12 CET.

June 10-11, 2025 - 8.2.4 Standardisation Workshop

Oslo, Norway

June 11, 2025 - EUnetCCC WP3 Annual meeting

Vejle, Denmark

The aim is to present the evaluation strategy and reach a shared understanding of the project's evaluation framework and approach, allowing to move forward with a common foundation.

June 16, 2025 - Site visit - Karolinska will visit Vall d'Hebron | Task 8.2.4 – Precision Cancer Diagnostics

Barcelona, Spain

Individuals from Karolinska will visit Vall d'Hebron on 16-17 june.

June 16, 2025 - Task 8.2.5 – Secondary Use of Clinical Data

Online

The work on the secondary use of data is in full swing. A key to success is engagement and broad participation.
We are therefore pleased to have held our first meeting with our participants. Now we join forces and continue
working together.

June 17, 2025 - Task 8.2.7 Survivorship Workshop

Porto, Portugal

This in-person meeting will bring together experts and task leads to advance the Survivorship Care Roadmap across Europe, featuring:
- Survey results and implications
- Thematic Working Group sessions
- Survivorship Hub concept development
- Patient engagement as a cross-cutting priority

June 18, 2025 - Task 8.2.6 – Clinical Trials: Core group meeting

Online

The next Core Group meeting will be used to discuss the inputs from the last in-person meeting.

June 19-20, 2025 - EUnetCCC WP Leaders Seminar

French National Cancer Institute (INCa), Paris

July 2-3, 2025 - EUnetCCC WP8 Workshop

Tromsø, Norway

December 1-2, 2025 - 8.2.4 Educational Seminar Precision Diagnostics

Barcelona, Spain

Looking ahead

WP8 Ramps Up with Key Workshops, Strategic Meetings, and Cross-Country Collaboration

As we move into spring, WP8 continues to gain momentum with several key meetings, workshops, and collaborative efforts on the horizon. May & June will bring opportunities for in-person connections, strategic planning, and shared learning across tasks and subtasks.

We encourage all partners to stay engaged, share updates, and actively participate in shaping the work ahead. Every contribution—large or small—helps strengthen our collective impact.

Stay Connected

If you have updates to share or ideas for upcoming newsletters, reach out to the Task 8.3 team. 

Don’t forget to follow us on LinkedIn for real-time updates and highlights from across
the network.

Thank you for your continued commitment to collaboration, innovation, and excellence in cancer care and prevention.

- The WP8 Communication Team -

Contact: Nina Nicoara nina.nicoara@outlook.com and EUnetCCC WP8
eunetccc.wp8@gmail.com